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A huge thank you to all of the Stillbirth Superheroes who helped us launch our mission to end preventable stillbirth on May 22, 2021 with the PUSH for Empowered Pregnancy Stillbirth Diagnosis & Prevention Symposium!
With your help, we were able to reach medical providers, maternal/fetal health advocates, loss families, policymakers, and others in every corner of the globe - literally! Check out this map of the Live Attendees:
Weren't able to join us live? Never fear! We've got you covered. :-)
Please find below the full recording of the event (English & Spanish subtitles available!) plus links to supplemental reading and resources recommended by each of our illustrious speakers.
VIDEO RECORDING
If you get an error that the video can't play on your mobile device, please click to view on YouTube instead (should work on any device): https://youtu.be/mxrUKUC1MaA
¡Disponible con subtítulos en español!
Thank you to Por El Arte Del Aprender for generously donating your translation services
SUPPLEMENTAL MATERIALS & REFERENCES
Thank you to our speakers for so generously donating your time and expertise to help share knowledge and raise awareness of stillbirth and the proven strategies for preventing this devastating pregnancy outcome.
Below are slides, references, and other resources recommended by our panel of experts from the 2021 PUSH for Empowered Pregnancy Stillbirth Diagnosis & Prevention Symposium, listed in order of appearance at the event.
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The Vindicator Dr. Harvey Kliman, MD PhD Placental Pathologist at Yale
The Ringleader Samantha Banerjee, Executive Director of PUSH for Empowered Pregnancy
The Super Sleuth Dr. Marta Cohen, OBE MD FRC Path. DMJ (Pathol) Dip Med Ed Pediatric Pathologist, University of Sheffield
The Magnetic Master Dr. Elspeth Whitby, PhD Fetal MRI Specialist & Researcher, University of Sheffield
The Intrepid Investigator Beatrix Thompson, BA, Postgraduate Researcher in Maternal Fetal Medicine & Pregnancy Loss
The Rainbow Defender Dr. Alex Heazell, MBChB(Hons) PhD MRCOG, Operator of the UK Rainbow Clinics & Director of the Tommy's Research Centre
Guardian of Hope Dr. Kristen Sharp, MD, Founder of the Hope After Loss Clinic, University of Wisconsin-Madison
The Trailblazer Dr. Heather Florescue, MD, First to Implement NHS Saving Babies Bundle Protocol in the US
The Groundbreaker Dr. Patty Ng, MD, Founder of 1060 OBGYN & NYC's First "Rainbow Afternoons"
Bringer of Rainbows Dr. Joanne Stone, MD MS, Director of Maternal Fetal Medicine at Mount Sinai & NYC's First Rainbow Clinic
The Crusader Marny Smith, Agent of Change and Originator of the Ariadne Labs Saving Babies' Lives Stillbirth Prevention Pilot Program
The Equity Champion Dr. Terri Major-Kincade, MD MPH FAAP, Neonatologist, Pediatrician, Perinatal Hospice Provider & Expert in Racial Health Disparities
The Stopwatch Dr. Jim Nicholson, MD MSCE, Family Physician and Expert in Term (37+ week) Pregnancy Management
Dr. Harvey Kliman, MD PhD
Research Scientist & Director of Yale’s Reproductive and Placental Research Unit
Symposium Highlights: Introduction ("It's Not the Mother's Fault"), Session ("Estimated Placental Volume to Prevent the Most Common Cause of Stillbirth")
Website: klimanlabs.yale.edu (Pregnancy Loss)
Further Reading on Estimated Placental Volume (EPV): www.measuretheplacenta.org (How to Measure, Research, Find a Provider)
Instructions to have your baby's placenta reviewed by Dr. Kliman
Samantha Banerjee
Executive Director of PUSH for Empowered Pregnancy
Symposium Highlights: Introduction ("Alana's Story")
Recommended Resources for Perinatal Bereavement: Return to Zero: Hope (Virtual Support Groups, Webinars, Brochures), Unimaginable (Book) by Brooke Taylor, Glow in the Woods (Blog), An Unexpected Family Outing (Social Media), Samantha's Birth Story
Recommended Resources for Pregnancy After Loss: Pregnancy After Loss Support, Count the Kicks Fetal Movement Tracking App, Different Baby, Different Story (Book) by Dr. Joann O'Leary, Lynnda Parker, Margaret Murphy & Dr. Jane Warland
Dr. Marta Cohen, OBE MD FRC Path. DMJ (Pathol) Dip Med Ed
Pediatric Pathologist, University of Sheffield
Symposium Highlights: Session ("Undetected Fetal Growth Restriction")
Referenced Study: Classification of stillbirth by relevant condition at death (ReCoDe): population based cohort study by Gardosi et al (2005)
Referenced Study: Preventing stillbirths through improved antenatal recognition of pregnancies at risk due to fetal growth restriction by Gardosi et al (2014)
Referenced Study: Maternal and fetal risk factors for stillbirth: population based study by Gardosi et al (2013)
Dr. Elspeth Whitby, PhD
Fetal MRI Specialist & Researcher, University of Sheffield
Symposium Highlights: Session ("MRI to Detect Placental Insufficiency")
Website: sheffield.ac.uk/medicine/people/oncology-metabolism/elspeth-whitby
Beatrix Thompson, BA
Postgraduate Researcher, Maternal Fetal Medicine Clinical Research, Yale School of Medicine
Symposium Highlights: Session ("Causes of Stillbirth")
Dr. Alexander Heazell, MBChB(Hons) PhD MRCOG
Operator of the UK Rainbow Clinics & Director of the Tommy's Research Centre
Symposium Highlights: Session ("UK Rainbow Clinics: Creation, Efficacy, Impact")
Slide Deck (PDF): The Rainbow Clinic: creation, efficacy, impact
Website: University of Manchester
Referenced Study: Risk of recurrent stillbirth: systematic review and meta-analysis by Lamont et al (2015)
Referenced Study: Parents’ experiences and expectations of care in pregnancy after stillbirth or neonatal death: a metasynthesis by Mills et al (2014)
Referenced Study: Care in subsequent pregnancies following stillbirth: an international survey of parents by Wojcieszek et al (2016)
Referenced Study: “Not just a normal mum”: a qualitative investigation of a support service for women who are pregnant subsequent to perinatal loss by Wojcieszek et al (2017)
Referenced Study: No. 369-Management of Pregnancy Subsequent to Stillbirth by Ladhani et al (2018)
Further Reading: The Rainbow Clinic (Tommy's)
Dr. Kristen Sharp, MD
Founder of the Hope After Loss Clinic, University of Wisconsin-Madison
Symposium Highlights: Session ("Hope After Loss Clinic")
Website: University of Wisconsin
Brochure: Hope After Loss Clinic
Dr. Heather Florescue, MD
First OBGYN to Implement NHS Saving Babies Bundle Protocol in the US
Symposium Highlights: Session ("First to Implement Int'l Prevention Protocols in the US")
Referenced Protocols: NHS England Saving Babies' Lives Care Bundle
Referenced Protocols: Australia Safer Baby Bundle
Improving Care for Women Who Have Experienced Stillbirth – OBGYN News
Decreased Fetal Movement: Time to Educate Patients and Ourselves – OBGYN News
Recommended Patient Education Tool: Count the Kicks Posters
Recommended Patient Education Tool: Count the Kicks Free Fetal Movement Tracking App
Recommended Patient Education Tool: Safer Pregnancy Reminder Card
Dr. Patty Ng, MD
Founder of 1060 OBGYN & NYC's First "Rainbow Afternoons"
Symposium Highlights: Session ("Caring for Loss Moms at NYC's First 'Rainbow Afternoons'")
Website: www.1060obgyn.com
Slide Deck (PDF): Challenges to Caring for Loss Moms
Dr. Joanne Stone, MD MS
Director of Maternal Fetal Medicine at Mount Sinai & NYC's First Rainbow Clinic
Symposium Highlights: Session ("Bringing the First Rainbow Clinic to NYC")
Website: mountsinai.org/profiles/joanne-stone
Marny Smith
Loss Mom Agent of Change and Originator of the Ariadne Labs Saving Babies' Lives Stillbirth Prevention Pilot Program
Symposium Highlights: Session ("Loss Mom Agent of Change for the Ariadne Labs Prevention Pilot")
Referenced Video: Dr. Catherine Calderwood "Reducing Stillbirth in Scotland - changing culture and practice, a success story"
Referenced Protocols: NHS England Saving Babies' Lives Care Bundle
Dr. Terri Major-Kincade, MD MPH FAAP
Neonatologist, Pediatrician, Perinatal Hospice Provider & Expert in Racial Health Disparities
Symposium Highlights: Session ("Systemic Racism is Killing Black Babies")
Slide Deck (PDF): How Systemic Racism and Unconscious Bias lead to increased rates of Stillbirth for Black Women
Website: www.drterrimd.com
Referenced Study: Racial and Ethnic Disparities in United States: Stillbirth Rates: Trends, Risk Factors, and Research Needs by Hogue & Silver (2011)
Referenced Study: Racial residential segregation and racial disparities in stillbirth in the United States by Williams et al (2018)
Referenced Study: Do US Black Women Experience Stress-Related Accelerated Biological Aging? by Geronimus et al (2010)
Referenced Study: “Weathering” and Age Patterns of Allostatic Load Scores Among Blacks and Whites in the United States by Geronimus et al (2006)
Referenced Video: The Cliff of Good Health
Further Reading: Beyond Health Care: The Role of Social Determinants in Promoting Health and Health Equity, Social Determinants of Health (SDOH), Zip Code & Life Expectancy, Perinatal Safe Spots
Dr. Jim Nicholson, MD MSCE
Family Physician and Expert in Term (37+ week) Pregnancy Management
Symposium Highlights: Session ("Optimal Birth Timing & Challenges to Early Delivery")
Website: wellspan.org/provider-search/profile/James-Nicholson-MD-Family-Medicine-Lebanon-PA/3261
Research: AMOR-IPAT (Active Management of Pregnancy at Term)
Also don't miss the enlightening Q&A Session from the Symposium featuring all speakers above!
Questions about any of the above? Don't hesitate to reach out.
Fired up for change? Join us! We need your help to end preventable stillbirth.
#UnitedWePush For Families. For Babies. For Change.